Trapped by Uncertainty

Trapped by Uncertainty combines unwearable elements, such as shards of glass and crystals, with materials used in everyday fashion design. The outer layer of the design uses materials like tulle and mesh that have been manipulated to appear as smoke billowing around the individual, to represent the feeling of uncertainty that many people with GPP experience between flares. The placement of colorful glass on the hands, face and body represent the beauty and individuality of people living with this rare disease.

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Click & Drag

Carlie

Person with generalized pustular psoriasis (GPP)

“When I’m about to get a flare, I’m already thinking about if I’m going to be able to make any plans or have to cancel things because it puts me immediately on alert. What’s going to happen in the next week? Am I going to be able to do my normal routine? Probably not.”

Not only do people in a generalized pustular psoriasis (GPP) flare suffer intense physical symptoms but they may experience a devastating emotional burden that significantly impacts quality of life and leads to overwhelming feelings of uncertainty, anxiety, and depression.

Experiences with GPP are not universal and vary by person.

Bart Hess x FIT

Designers

“We were looking for materials that had a lot of changeability. We came brainstorming as a group, and it’s a challenge to represent something as nebulous as uncertainty in a physical form.”

In collaboration with Bart Hess, FIT DTech Lab students designed this piece using a primarily cool color palette, with shades of greys, blues, black and white elements to illustrate this idea of a “cloud” of uncertainty that a person living with generalized pustular psoriasis (GPP) may experience.

Tightly wrapped lycra was used to cover the statue, with the mannequin’s arms uniquely positioned in a way to represent the feeling of being trapped, unable to break free during a flare. The manipulation of tulle and mesh on the outer layer is intended to emulate smoke billowing around the individual, representing the feeling of uncertainty, while the placement of colorful glass on the hands, face and body demonstrates the beauty and individuality of people living with this rare disease.

Experiences with GPP are not universal and vary by person.

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